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| What,
if anything, is the difference between "wrongful birth" and "wrongful life"?
How do they affect society? S.C., Mississauga. These are two types of court
actions which, though different, are alike in that they are based on the
concept that there are lives "unworthy of life," a concept enunciated by
two German professors in 1920. (Permission to Destroy Life Unworthy of
Life: Karl Binding, professor of law, Leipzig; Alfred Hoche, professor
of psychiatry, Freiburg). Hoche stated that seriously handicapped, learning
disabled, and brain-damaged people were "human ballast," and killing them
was "an allowable, useful act," of benefit to society.
Some 20 years later, the
Nazis carried this theory to its logical conclusion, and killed handicapped
children, the mentally ill, gypsies, etc., (and soldiers injured in the
war).
Wrongful Birth has been defined
as "one in which the parents of a defective child allege that, had the
parents been fully informed by the doctor, they would have aborted the
fetus, and thus would not have suffered the emotional, financial, and physical
trauma of having a defective child" (Rogers, in 33 South Carolina Law Review,
1982).
The first claim for wrongful
birth heard in court, was Gleitman v. Cosgrove, 1967, in New Jersey. Mrs.
Gleitman contracted rubella during pregnancy and her baby was born with
several defects. She claimed that had she been informed of the possible
effects of rubella, she would have aborted the child. The court dismissed
the case on the grounds that it could not measure the "unmeasurable benefits
of parenthood" against the "emotional and financial burden" imposed by
the child's defects. The court found a preference for life over non-existence.
Twelve years later in Berman
vs. Allen, 1979, Mrs. Berman claimed that she had been denied the opportunity
to abort her child with Down's syndrome because her physician failed to
tell her about amniocentesis. The court held that since Roe v. Wade in
1973, public policy required that a woman be given a meaningful opportunity
to abort her child. The court awarded damages for the parents' emotional
anguish and pain.
Impaired life vs. no life
By contrast, wrongful life
actions are brought on behalf of the "defective child" and allege that,
had the physician informed the parents of the "deformity," he or she would
not have been born and would not have to live with a handicap. In 1977,
a New York court heard a child's case for damages. The child's parents
had been told -- incorrectly -- that her older sister's polycystic-kidney
disease was not hereditary. The court ruled that the doctor's negligence
violated a fundamental right of a child to be born as a whole, functional
human being." A superior court of appeals rejected this ruling, and said
that there is no "fundamental right ... to be born whole" at either common
or statutory law. The court refused to balance the value of impaired life
against no life.
So much concern has been
raised by these issues that some states in the U.S. have passed legislation
prohibiting legal action based on wrongful birth.
Similar lawsuits against
doctors have also been heard in Canadian courts. In a wrongful birth case
(December 1996), an Ottawa court ruled that two doctors must pay close
to $3 million in damages to the parents of two handicapped children.
A "landmark case" of wrongful life was also heard in the Manitoba Court
of Queen's Bench. In the latter case it was the reaction of some ethicists
that was most disturbing.
The director of the University
of Manitoba's Centre for Applied Ethics, Arthur Schafer, was quoted in
the Globe and Mail as saying: "These are very thought-provoking cases.
They do indeed challenge the assumption that life in itself has value.
They invite us to consider whether certain kinds of life are worse than
no life at all. Personally, I'm of the opinion that life is not always
a benefit." Then he added: "And our society has determined there is a linkage
between the value of life and the quality of life." Mr. Schafer did not
define "our society," or "linkage," nor did he say how the linkage had
been "determined," let alone proved.
His statement would be flatly
denied by many handicapped persons, by the elderly and others whose quality
of life might be poor, but whose enjoyment of life, and value of life,
are high. The right to protect children from excessively burdensome lives,
as suggested by Schafer, can only lead to abortion, euthanasia and infanticide.
We are almost full circle
back to Binding and Hoche in 1920. A chilling thought for the future.
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